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Bibliographie

Chapitre 1

Partie I

Akesson, K. M., Saveman, B.-I. et Nilsson, G. (2007). Health care consumers’ experiences of information communication technology–a summary of literature. International Journal of Medical Informatics, 76(9), 633‑645. https://doi.org/10.1016/j.ijmedinf.2006.07.001

Archer, N., Fevrier-Thomas, U., Lokker, C., McKibbon, K. A. et Straus, S. E. (2011). Personal health records : a scoping review. Journal of the American Medical Informatics Association, 18(4), 515‑522. https://doi.org/10.1136/amiajnl-2011-000105

Bates, D. W., Cohen, M., Leape, L. L., Overhage, J. M., Shabot, M. M. et Sheridan, T. (2001). Reducing the frequency of errors in medicine using information technology. Journal of the American Medical Informatics Association, 8(4), 299‑308. https://doi.org/10.1136/jamia.2001.0080299</

Cullen, R. J. (2002). In search of evidence: family practitioners’ use of the Internet for clinical information. Journal of the Medical Library Association: JMLA, 90(4), 370‑379.

Daraz, L. et Bouseh, S. (2021). Developing a quality benchmark for determining the credibility of web health information- a protocol of a gold standard approach. Frontiers in Digital Health, 3. https://doi.org/10.3389/fdgth.2021.801204

Daraz, L. et Dogu, C. (2025). Developing and validating a user-friendly quality benchmark: enhancing the integrity of online health information for patients and clinicians. Journal of Patient Experience, 12. https://doi.org/10.1177/23743735241309468

Daraz, L., Macdermid, J. C., Wilkins, S., Gibson, J. et Shaw, L. (2011). The quality of websites addressing fibromyalgia: an assessment of quality and readability using standardised tools. BMJ Open. https://doi.org/10.1136/bmjopen-2011-000152</

Eysenbach, G. (2000). Consumer health informatics. BMJ : British Medical Journal, 320(7251), 1713‑1716. https://doi.org/10.1136/bmj.320.7251.1713

Gillaspy, M. L. (2005). Factors affecting the provision of consumer health information in public libraries: the last five years. https://hdl.handle.net/2142/1738

Glasgow, R. E., Boles, S. M., McKay, H. G., Feil, E. G. et Barrera, M. (2003). The D-Net diabetes self-management program: long-term implementation, outcomes, and generalization results. Preventive Medicine, 36(4), 410‑419. https://doi.org/10.1016/S0091-7435(02)00056-7

Glasgow, R. E., Bull, S. S., Piette, J. D. et Steiner, J. F. (2004). Interactive behavior change technology: a partial solution to the competing demands of primary care. American Journal of Preventive Medicine, 27(2), 80‑87. https://doi.org/10.1016/j.amepre.2004.04.026

Jimison, H., Gorman, P., Woods, S., Nygren, P., Walker, M., Norris, S. et Hersh, W. (2008). Barriers and drivers of health information technology use for the elderly, chronically ill, and underserved. Evidence Report/Technology Assessment, (175), 1‑1422.

Kayser, L., Kushniruk, A., Osborne, R. H., Norgaard, O. et Turner, P. (2015). Enhancing the effectiveness of consumer-focused health information technology systems through eHealth literacy: a framework for understanding users’ needs. JMIR Human Factors, 2(1). https://doi.org/10.2196/humanfactors.3696

Levy library. (2025, 11 juin). Consumer health information : a brief guide. Icahn School of Medicine at Mount Sinai. https://libguides.mssm.edu/consumer-health-information/consumerhealth

Mayo Clinic. (2025, 11 juin). Personal health records and patient portals. Mayo Clinic. https://www.mayoclinic.org/healthy-lifestyle/consumer-health/in-depth/personal-health-record/art-20047273

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Neter, E. et Brainin, E. (2012). eHealth literacy : extending the digital divide to the realm of health information. Journal of Medical Internet Research, 14(1), e1619. https://doi.org/10.2196/jmir.1619

Park, Y. et Yoon, H.-J. (2020). Understanding personal health record and facilitating its market. Healthcare Informatics Research, 26(3), 248‑250. https://doi.org/10.4258/hir.2020.26.3.248

Scott Kruse, C., Karem, P., Shifflett, K., Vegi, L., Ravi, K. et Brooks, M. (2018). Evaluating barriers to adopting telemedicine worldwide: A systematic review. Journal of Telemedicine and Telecare, 24(1), 4‑12. https://doi.org/10.1177/1357633X16674087

Shamsujjoha, Md., Grundy, J., Khalajzadeh, H., Lu, Q. et Li, L. (2024). Developer and end-user perspectives on addressing human aspects in mobile eHealth apps. Information and Software Technology, 166, 107353. https://doi.org/10.1016/j.infsof.2023.107353

Tang, P. C., Ash, J. S., Bates, D. W., Overhage, J. M. et Sands, D. Z. (2006). Personal health records: definitions, benefits, and strategies for overcoming barriers to adoption. Journal of the American Medical Informatics Association: JAMIA, 13(2), 121‑126. https://doi.org/10.1197/jamia.M2025

Tang, P. C. et Lansky, D. (2005). The missing link : bridging the patient–provider health information gap. Health Affairs, 24(5), 1290‑1295. https://doi.org/10.1377/hlthaff.24.5.1290

Partie II

Adler-Milstein, J. et Jha, A. K. (2017). HITECH act drove large gains in hospital electronic health record adoption. Health Affairs, 36(8), 1416‑1422. https://doi.org/10.1377/hlthaff.2016.1651

Bates, D. W., Saria, S., Ohno-Machado, L., Shah, A. et Escobar, G. (2014). Big data in health care: using analytics to identify and manage high-risk and high-cost patients. Health Affairs, 33(7), 1123‑1131. https://doi.org/10.1377/hlthaff.2014.0041

Beesley, S. J., Powell, A., Groat, D., Butler, J., Hopkins, R. O., Rozenblum, R., Aboumatar, H., Butler, A. M., Sugarman, J., Francis, L. et Brown, S. M. (2022). Evaluating the balance between privacy and access in digital information sharing. Critical Care Medicine, 50(2), e109‑e116. https://doi.org/10.1097/CCM.0000000000005234

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Chen, Y.-Y., Li, C.-M., Liang, J.-C. et Tsai, C.-C. (2018). Health information obtained from the internet and changes in medical decision making: questionnaire development and cross-sectional survey. Journal of Medical Internet Research, 20(2). https://doi.org/10.2196/jmir.9370

Columbia University Bureau of Applied Social Research. (1960). Review of Studies in the Flow of Information Among Scientists: Tables.

Daraz, L. et Dogu, C. (2025). Developing and validating a user-friendly quality benchmark: enhancing the integrity of online health information for patients and clinicians. Journal of Patient Experience, 12. https://doi.org/10.1177/23743735241309468

Daraz, L., Dogu, C., Houde, V., Bouseh, S. et Morshed, K. G. (2024). Assessing credibility : quality criteria for patients, caregivers, and the public in online health information-a qualitative study. Journal of Patient Experience, 11. https://doi.org/10.1177/23743735241259440

Daraz, L., Macdermid, J. C., Wilkins, S., Gibson, J. et Shaw, L. (2011). The quality of websites addressing fibromyalgia: an assessment of quality and readability using standardised tools. BMJ Open, 1(1). https://doi.org/10.1136/bmjopen-2011-000152

Daraz, L., Morrow, A. S., Ponce, O. J., Beuschel, B., Farah, M. H., Katabi, A., Alsawas, M., Majzoub, A. M., Benkhadra, R., Seisa, M. O., Ding, J. F., Prokop, L. et Murad, M. H. (2019). Can patients trust online health information? A meta-narrative systematic review addressing the quality of health information on the internet. Journal of General Internal Medicine, 34(9), 1884‑1891. https://doi.org/10.1007/s11606-019-05109-0

Das, S., Eisenberg, L. D., House, J. W., Lee, K. J., Lusk, R. P., Nielsen, D. R., Patel, M. M., Steckowych, J. M. et Ermini, E. B. (2011). Meaningful use of electronic health records in otolaryngology : recommendations from the american academy of otolaryngology–head and neck surgery medical informatics committee. Otolaryngology–Head and Neck Surgery: Official Journal of American Academy of Otolaryngology-Head and Neck Surgery, 144(2), 135‑141. https://doi.org/10.1177/0194599810393441

Davidoff, F. et Florance, V. (2000). The informationist : a new health profession? Annals of Internal Medicine, 132(12), 996‑998. https://doi.org/10.7326/0003-4819-132-12-200006200-00012

Dervin, B. (1983). An overview of sense-making research : concepts, methods and results. http://communication.sbs.ohio-state.edu/sense-making/art/artabsdervin83smoverview.html

Diaz, J. A., Griffith, R. A., Ng, J. J., Reinert, S. E., Friedmann, P. D. et Moulton, A. W. (2002). Patients’ use of the Internet for medical information. Journal of General Internal Medicine, 17(3), 180‑185. https://doi.org/10.1046/j.1525-1497.2002.10603.x

D’Souza, R. S., Daraz, L., Hooten, W. M., Guyatt, G. et Murad, M. H. (2022). Users’ guides to the medical literature series on social media (part 2) : how to appraise studies using data from platforms. BMJ Evidence-Based Medicine, 27(1), 15‑20. https://doi.org/10.1136/bmjebm-2021-111850

Erfani, S. S., Abedin, B. et Blount, Y. (2017). The effect of social network site use on the psychological well-being of cancer patients. Journal of the Association for Information Science and Technology, 68(5), 1308‑1322. https://doi.org/10.1002/asi.23702

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Eysenbach, G. et Kohler, C. (2003). What is the prevalence of health-related searches on the World Wide Web? Qualitative and quantitative analysis of search engine queries on the internet. AMIA … Annual Symposium Proceedings. AMIA Symposium, 2003, 225‑229.

Eysenbach, Gunther. (2002). Infodemiology: the epidemiology of (mis)information. The American Journal of Medicine, 113(9), 763‑765. https://doi.org/10.1016/S0002-9343(02)01473-0

Fox, S. (2014). The social life of health information. Pew Research Center. https://www.pewresearch.org/short-reads/2014/01/15/the-social-life-of-health-information/

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Guyatt, G., Cairns, J., Churchill, D., Cook, D., Haynes, B., Hirsh, J., Irvine, J., Levine, M., Levine, M., Nishikawa, J., Sackett, D., Brill-Edwards, P., Gerstein, H., Gibson, J., Jaeschke, R., Kerigan, A., Neville, A., Panju, A., Detsky, A., … Tugwell, P. (1992). Evidence-Based Medicine: A New Approach to Teaching the Practice of Medicine. JAMA, 268(17), 2420‑2425. https://doi.org/10.1001/jama.1992.03490170092032

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Handel, D. A., Wears, R. L., Nathanson, L. A. et Pines, J. M. (2011). Using information technology to improve the quality and safety of emergency care. Academic Emergency Medicine, 18(6). https://doi.org/10.1111/j.1553-2712.2011.01070.x

Hill, J., Bullock, I. et Alderson, P. (2011). A summary of the methods that the national clinical guideline centre uses to produce clinical guidelines for the national institute for health and clinical excellence. Annals of Internal Medicine, 154(11), 752‑757. https://doi.org/10.7326/0003-4819-154-11-201106070-00007

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Liu, D., Yang, S., Cheng, C. Y., Cai, L. et Su, J. (2024). Online health information seeking, eHealth literacy, and health behaviors among chinese internet users: cross-sectional survey study. Journal of Medical Internet Research, 26(1). https://doi.org/10.2196/54135

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Zhang, Y. (2014). Beyond quality and accessibility: Source selection in consumer health information searching. Journal of the Association for Information Science and Technology, 65(5), 911‑927. https://doi.org/10.1002/asi.23023

Zhao, Y. et Zhang, J. (2017). Consumer health information seeking in social media: a literature review. Health Information & Libraries Journal, 34(4), 268‑283. https://doi.org/10.1111/hir.12192

Zimmerman, M. S. et Shaw Jr, G. (2020). Health information seeking behaviour: a concept analysis. Health Information & Libraries Journal, 37(3), 173‑191. https://doi.org/10.1111/hir.12287

Partie III

Alotaibi, Y. K. et Federico, F. (2017). The impact of health information technology on patient safety. Saudi Medical Journal, 38(12), 1173‑1180. https://doi.org/10.15537/smj.2017.12.20631

Astier, A., Carlet, J., Hoppe-Tichy, T., Jacklin, A., Jeanes, A., McManus, S., Pletz, M. W., Seifert, H. et Fitzpatrick, R. (2020). What is the role of technology in improving patient safety? A French, German and UK healthcare professional perspective. Journal of Patient Safety and Risk Management, 25(6), 219‑224. https://doi.org/10.1177/2516043520975661

Borges do Nascimento, I. J., Pizarro, A. B., Almeida, J. M., Azzopardi-Muscat, N., Gonçalves, M. A., Björklund, M. et Novillo-Ortiz, D. (2022). Infodemics and health misinformation: a systematic review of reviews. Bulletin of the World Health Organization, 100(9), 544‑561. https://doi.org/10.2471/BLT.21.287654

Finney Rutten, L. J., Blake, K. D., Greenberg-Worisek, A. J., Allen, S. V., Moser, R. P. et Hesse, B. W. (2019). Online health information seeking among US adults : measuring progress toward a healthy people 2020 objective. Public Health Reports®, 134(6), 617‑625. https://doi.org/10.1177/0033354919874074

He, J., Baxter, S. L., Xu, J., Xu, J., Zhou, X. et Zhang, K. (2019). The practical implementation of artificial intelligence technologies in medicine. Nature Medicine, 25(1), 30‑36. https://doi.org/10.1038/s41591-018-0307-0

Kisa, S. et Kisa, A. (2024). A comprehensive analysis of COVID-19 misinformation, public health impacts, and communication strategies: scoping review. Journal of Medical Internet Research, 26(1). https://doi.org/10.2196/56931

Kruse, C. S., Smith, B., Vanderlinden, H. et Nealand, A. (2017). Security techniques for the electronic health records. Journal of Medical Systems, 41(8), 127. https://doi.org/10.1007/s10916-017-0778-4

Monkman, H. et Kushniruk, A. (2013). A health literacy and usability heuristic evaluation of a mobile consumer health application. Studies in Health Technology and Informatics, 192, 724‑728.

O’Connor, S., Hanlon, P., O’Donnell, C. A., Garcia, S., Glanville, J. et Mair, F. S. (2016). Understanding factors affecting patient and public engagement and recruitment to digital health interventions: a systematic review of qualitative studies. BMC Medical Informatics and Decision Making, 16(1), 120. https://doi.org/10.1186/s12911-016-0359-3

Statistique Canada. (2024, 23 janvier). Just over half of Canadians report accessing electronic health information in the past 12 months. https://www.statcan.gc.ca/o1/en/plus/5456-just-over-half-canadians-report-accessing-electronic-health-information-past-12-months

Tonsaker, T., Bartlett, G. et Trpkov, C. (2014). Information sur la santé dans Internet. Canadian Family Physician, 60(5), 419‑420.

Wilson, T. D. (2000). Human Information Behavior. Informing Science: The International Journal of an Emerging Transdiscipline, 3(2), 049‑056.

World Health Organization. (2022). Infodemics and misinformation negatively affect people’s health behaviours, new WHO review finds. https://www.who.int/europe/news/item/01-09-2022-infodemics-and-misinformation-negatively-affect-people-s-health-behaviours–new-who-review-finds